I put myself in the position of those suffering from the disease. Personally if I was suffering from a terminal illness and saw people dumping ice water on their heads to show solidarity I'd be insulted. "See what it's like to walk in my shoes" would be my reaction. I would rather see money and time being spent on ways to find a cure than to see people and celebrities stroking their egos on youtube for advertising and awareness. But that's just me; to each their own.
Dreams are like horses; they run wild on the earth. Catch one and ride it. Throw a leg over and ride it for all its worth.
Psalm 25:7
https://youtu.be/vHVoMCH10Wk